WEBVTT
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What's up, everybody, there's another episode of bull I've Uncensored,
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Season two, Episode seven. Today, I have with me hashtag unbreakable.
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You bet you, mister Tony Jacobson personal trainer extraordinary and
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also oh uh Asian with OI. So we're going to
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talk about that today. Tony, how are you good? Good?
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What up? What up? Hello everybody. It's good to be
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here today.
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Glad to have you. Yeah. So, Tony, tell me a
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little bit about your lie journey when you were diagnosed,
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et cetera.
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Yeah, my OI journey started in the warm summer of
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nineteen seventy one when I was born pretty much. You know,
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I wasn't diagnosed until I was about sixteen months old,
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somewhere around there. You know, I had a few breaks
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leading up to that, broke it, you know, broke one
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femur and then had that cast. It came back like
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six months later after breaking the other one. And then
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that's when the doctors and everybody were questioning what was happening.
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And fortunately for me, there was a doctor. This was
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in Los Angeles, That's where I'm from. So luckily there
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was a doctor at LA Children's Hospital who knew the
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signs and was like, oh yeah, let's have a look
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and see if he might have OI, and hence I
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was diagnosed at that point. So yeah, it's been I
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like to call it, you know, I just kind of
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briefly call it the OI FAB four, which is the
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type I have OI Type one. I've had about seventy
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ish seventy five ish breaks throughout my life, twelve surgeries,
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and I have steel metal rods in both femurs and
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both tibias. So yeah, and I used a wheelchair when
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I was a kid, went to crutches in my teens,
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and started walking in my early twenties.
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That's fantastic. Yeah, No, it's funny because I'm a type
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of type two. I know, like back in our day,
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the FAB four, as you say, were you know, kind
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of the standard. And now we've got almost eight types documented.
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Oh there's so many.
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Oh it's insane that I don't even know what the
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hell I am anymore.
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And it's true that there's so much overlap of the
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types now, I mean, I know it depends on the
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DNA the actual DNA string, but there is so many,
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so much overlap in the severities, so you never know
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where you're gonna fall.
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Yep, So I too have titanium in both my femurs
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and tuvus upper and lower leg. For those of you
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that don't know all the medical jargon out there, I
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apologize like sound like we're talking in code, but I
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promise you were not. So. Yeah. So I was diagnosed
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with birth in nineteen eighty eighty eight out here in Massachusetts.
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And you know, they didn't know anything was wrong until
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they wanted to do an ulder sound that my mother
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after her water broke. I ended up being breach and
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I had fourteen breaks at birth. Oh my gosh, had
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both times and seven ribs and they broke my collarbone.
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Take me out. Wow. So I had a rough start, Yeah,
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a little bit, a little bit, a little bit, but
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you know, you know, just.
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Just even being somewhat of a type too. You know,
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it's good you're here because you know that's the one
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that they say isn't gonna make it.
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So yeah, that's uh, it's crazy. Like you know, I
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didn't really find out, not that anything was withheld from
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me per se, but this wasn't something my parents talked
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about all that much. But now that I'm thirty six
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going on thirty seven, Uh, you know, we've had those
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conversations and hard talks and you know, knock on wood,
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thank God. Like I'm really reasonably in good health all
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things considered. You know, we'll share Brown. I don't see
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that changing anytime soon. But uh, you know, for those
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that watched the show or listen to the show, and yeah,
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well know, i'm you know, concert promoter, and I also
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play it in a heavy metal band. So that's pretty
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bad as I think, at least that's what I've been
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told anyway. So how did you end up getting into
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being a personal trainer? I mean, you know, oh, I
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folks have our limitations obviously, but was that kind of
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due to your own frustration of trying to get any
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physical assistance with h you know, bettering your physique?
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Yeah, I mean my personal story really came because I
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went through like my own personal transformation later on in
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life too. So, you know, because of the OI, I
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was very much not an active person, you know, which
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most oires aren't. And so even when I started walking
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on my own in my early twenties, I was still
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being very careful and I didn't want to break any
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more bones, so I didn't move and my health declined.
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So over the next twenty years it even got worse.
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So coming up on my fortieth birthday, I was in
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the worst health that I had ever been and just
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beyond the OI you know, I hadn't broken many bones
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between twenty and forty, but I was still just you know,
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suffering all the consequences of everything. So in addition to that,
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I was overweight, you know, facing like chronic fatigue, chronic pain,
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all the good stuff, you know, all the fun stuff.
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And so when I was coming up on my fortieth
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I was like, you know, really in bad shape, and
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I started kind of thinking about doing something, but I
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just couldn't get there, you know, because I was still
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dealing with a lot of stuff that was oh I
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related as far as mentally right, all my mental blocks,
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and so when I was but when I turned forty one,
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I ended up going to the doctor because I had
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pain in my stomach and he was like, well, let
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me do an EKG on you to test your heart,
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and so he did that and he told me that
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I might have had a small heart attack. So at
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that point, the good news is I didn't have a
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heart attack. That's first of all. The second of all,
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it ends up. I have a bicuspit valve, a order valve.
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That's why I was kind of reading the way that
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it did. But it was basically that incident that made
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me realize I needed to do something because I was like, well,
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this isn't gonna fly. I need to do something because
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you know, I don't want to die young, and I
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want to get in some sort of better shape for myself.
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I want to do things I haven't ever done. So
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for me, that was the point when everything changed. I
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had to start, you know, really doing the mental work
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of figuring out how to work with the OI to
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start exercising, and you know, I at that point I
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hired a personal trainer, and so it was a it
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was a great move on my part. He was really cool.
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He he understood, he learned about a why, he worked
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with me in the right way, and you know, over
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the course of like eight months, I got healthier than
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I had ever been. So I went through a full transformation.
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I lost a lot of weight. I dropped a lot
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of weight. I ended up running, I ended up jumping.
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I ended up doing like really like big physical things
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that I had never done before. Yeah, it was like
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I couldn't believe it. It was really like a huge moment.
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I talked about it in my book and that was
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like kind of the impetus for me to say, you know,
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what I've been through was it feels really good. I
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know it's very important what I was able to accomplish,
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and I want to be able to share this with others.
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So that's why I wrote my first book, disab Your Disability.
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Kind of was like, well, now I have a story
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to tell, So I'm going to tell this story and
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I'm going to help as much as I can, not
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only my fellow a Wires, but just anybody that is
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dealing with the physical discs ability. So through that I
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wrote the book and actually I got my certification to
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be a trainer before that because as I was coming
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out of my transformation, you know, I knew I wanted
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to help and I wanted to do it the right way.
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So I wanted to get the training. I wanted to
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you know, know, how to really do what I could
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do and do it officially. So that's when I went
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and got my certification and did all the training and
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you know, really stepped into the world of personal training.
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And it started with the Wires and then kind of
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started branching out to other people with other disabilities and
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ever since then. That was two thousand and fifteen, I
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think when I first got my So just coming up
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on ten years this year, I just congratulations.
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Yeah for sure. No, wh when I was surfing through
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the OLIF message board or whatever on Facebook, I saw
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your post for your book or disabled your disability. And
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that's always kind of the mentality I've always had in general,
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you know, being in Massachusetts and Central mass I was
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kind of a big fish in a small pond, shall
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we say, when it came to ah in my areas.
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So I didn't have a ton of friends with it
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growing up. So I kind of learned how to live
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in spite of my situation. And you know, my parents
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always gave me a very can't do mentality, and you know,
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if it was unsafe, and we were like, you know, Josh,
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you know, cut the shit, it's not a good idea, right,
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you know. It was all kind of common sense based,
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and I was really lucky to have the support system
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I did in my younger years growing up as a kid,
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you know, I know, we all kind of have different
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severities and whatnot. Did you deal with a lot of
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you know, getting picked on at school or anything like that,
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or were kids pretty decent.
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No, I had my fair share. I had my fair
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share of bullies and kids that didn't understand. And you know,
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now now that I'm wiser and more seasoned, I understand
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that they're just they don't know, they just don't know
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what to do, right, But back then, it was really
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painful and hurtful. And you know, I spent a lot
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of time as O wires. I see that through line
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that we spend a lot of time on our own, right.
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We we really days being laid up, either in the
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hospital or at home, in casts and all that great stuff.
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So I spent a lot of time alone. When I did,
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you know, go to school, I had I had friends
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that had other disabilities too, which was great. I only
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knew one other person with OI and then we lost contact,
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and then I didn't talk to anybody else with OI
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until I was in my forties. But yeah, going through
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my childhood, it was very much me just trying to
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deal with it on my own. And you know, there's
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two camps in the OI world. I feel where either
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the parents are very much maybe like your parents, where
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they're like, yeah, just go and do it, man, Just
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you know, do what you gotta do. And then you
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have parents like mine who were like, don't do anything.
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They careful, don't move. And I have type one, which
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is mild, right, and so I had but I had
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enough breaks early on to concern my parents. Of course,
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I was having like most of my breaks in those
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first like five six years, so I can I know
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why they were like that, but they were that way.
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They wrapped me in bubble, They told me don't do anything.
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They were very protective of me. So you know, there's
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those two camps. So I definitely was brought up in
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the breaking is a bad thing, don't do it, avoid
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it at all costs, right. Yeah.
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Now, it was just quite the contrast from growing up
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in that kind of an environment to you know, pushing
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your physical limits and you know, getting into the shape
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that you got in later in the life. Yeah, what
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was that like for you? Like? Mentally, man, it was.
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It changed my entire life. Like I literally feel like
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I'm living a second life ever since my transformation, because
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it's you know, I talk about it in the book too,
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and there's a story I share about my mom. I
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don't want to spoil it for anybody that's gonna read
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the book, because it's a great story. But I can
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just say that, you know, the perception of everyone around
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me and how they perceived me prior transformation. Put it
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that way, everything changed, you know. So it had a
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significant change in how I operate in the world. And
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so not only for myself, but it was for everybody
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around me too, my wife, my kids, like my friends,
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people that have known me all my life. You know,
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they're like, wow, I mean this is it's like you're
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a totally different person Tony and I and I am
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a totally different person. I totally feel like I don't
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have the same mentality. I don't have the same thoughts.
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I'm much more outgoing, I don't have the same fears
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around they stuff, especially, I'm just more mindful of how
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I move. So there's a lot of a lot of
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different things mentally and emotionally. It feels great, like I'm
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much happier just not being in pain every day. That
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that alone is awesome. The fact that I can do
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things that I wouldn't have ever thought about doing before,
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that's awesome too, because then I you know, it opens
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up my world and so it's those things that I
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want to help other people with. That's why I'm like